As fellow sufferers of DCM know it comes with other problems than are linked to the illness i happen to have AF ( Atrial Fibrillation - Irregular Heartbeat ) for which i have to take warfarin to keep the blood thin so my blood does not clot.
With keeping the blood thin i like others have to be very care full when using a knife in the kitchen or when i do my hobby of carpentry as a bad cut can be rather serious.
One Wednesday 2 weeks ago i noticed i was passing blood i was sent straight to hospital where my warfarin was stopped straight away as warfarin can cause internal bleeding after numerous questions, Blood tests, Examinations, Xrays, it was decided that i would be put on the waiting list to have a Colonoscopy. By the Thursday the bleeding had stopped and i was discharged later that day and thankfully to this date i have not had any more problems.
Today i received my appointment i am to report to the clinic on the 3rd of Nov 2011 for my procedure and will be allowed home later the same day.
For the past few weeks i have had bouts of feeling unwell it is hard to explain how i feel but very similar to when i was very first diagnosed it is more a feeling of having the flu with chest ache is the way i would explain it i have also been waking up in the early hours of the morning with bouts of gasping for breath.
I have been told by my GP that i have sleep apnea so i have been referred to papworth for tests and observation again another appointment to write on the calender. From what i understand some suffers of this illness wear an oxygen mask at night to help them sleep i do not want to go down that route if i can help it so i am going to follow the advice of my friend and fellow blogger and try to lose some weight also exercise a bit more.
I know to some people who do not suffer from any of the problems mentioned this might not be very interesting reading. The comments mentioned will maybe help some of my DCM friends.
Mick when you have the Colonoscopy make sure they give you some stuff to knock you out or just make you drowsey because it can be painful. They fill you full of air to open your tubes and when they get in a fair way it hurts.
ReplyDeleteMick you are doing the right thing mate, we are suffering this shitty disease and it has many drawbacks. we have to be aware of what can amplify our condition in both ways really, if something is good then do more of it and something is bad do less. So the extremes of what we suffer can have an effect on us. Sleep apnea can be made worse by having unwanted weight and to lose weight can really help. Keep with it Mick and try not to get down with it, i know its hard and when i feel down i want chocolate and its an endless cycle but you must try and remember i am here to talk..
ReplyDeleteyou good friend and fellow Hearty Jon x